Migraine stories
People affected by migraine share their personal experience
The migraine stories shared below aim to show the real impact of living with migraine, whilst also offering support and comfort to others affected by this debilitating but often misunderstood condition. Each person’s experience of living with migraine will be different – from the symptoms to frequency and severity of attacks, to the treatments used and the impact on work, family and social life.
Barbara
“The aura symptoms make me extremely vulnerable and can be temporarily disabling”
Abigail
“The headache was severe and prolonged and I felt a tingling sensation in my left limbs”
Selina
“I have done all sorts of stuff whilst in recovery – such as writing music and having business ideas”
Saskia
Nisha
“I despair for those suffering in silence or who are unaware of what support is out there”
Lauren
Taiyeba
Pippa
Alison
“I will always be grateful to them for their kind and generous treatment of me”
Gordon
Vicky
Nicholas
“I still try to live every moment to the fullest and experience everything I can”
Kate
“Although I was referred to a neurologist, I was never referred to a migraine specialist”
Chris
Lucy
Emily
Gary
“I can only hope that there is a magic solution out there in the near future”
Chloe
Emma
“Having suffered from migraine all his life, my father knew how to help me”
Julie
“I prayed not to be hit with a migraine when I was attending interviews or other important events”
Clive
“It is almost impossible to fully express the pain to those who have never experienced a full migraine attack”
Heather-May
Kyndall
“I wish for migraine to be accepted and treated as the world’s third most common disease”
Sarah
“I live in hope that one day something will stop this so I am always ever hopeful”
Jacqueline
Lorraine
Amanda
“Dear Migraine, I feel it’s time to write to you. You have been a part of my life for so long”
Richard
“I ended up in the emergency department with slurred speech and weakness”
Gary
Dawson Family
“Heartbreakingly for our three children, the headache free days are rare”
Elizabeth
“I increasingly feel that I have not been able to fulfill my potential”
Beth
Rebecca
“I was diagnosed with chronic daily migraine, trigeminal neuralgia and hemicrania continua”
Patricia
“I had pain down the left side of my head and face and could not think clearly”
Rebekah
Lewis
Claire
“Everyone always used to say ‘it’s just a headache’ but you know your own body”
Sharron
Graham
“One of the hard things to deal with is how other people react to my migraines”
Clare
“If you get migraine, or are a care giver for someone who is, just remember that you are not alone”
