I really hope a cure can be found in my lifetime
My migraine started in 1989 at age 20. The frequency increased in 1995, whilst at university in Edinburgh.
I had a suspected stroke scare a few years ago, thankfully it was not , it was a severe migraine.
Thirty years on and I now suffer about 12 migraines a month and I find it increasingly difficult to recover. I suffer from nausea and vomiting if I don’t take my medication in time (Rizatriptan). I have to lie down for about an hour with a warm bean bag over my forehead. I have lost so many days of employment recently that I now suffer from anxiety due to fear of losing my job.
I am now trying another preventative medication (Nadolol) I have tried about 10 over the years and none have been successful.
I have missed out on so many life chances over the years and just want to lead a normal life migraine free. I recently spoke to my GP about my prescription changing to Aimovig. I will fight until I get to try the world first preventive migraine medication.
Low points in my life are feeling judged by others “it’s only a headache, take paracetamol “. When I finally received my diagnosis from the neurologist I want to carry my letter around with me to prove to all I have a illness with no cure, only a life of misery.
Recently I applied for Personal Independence Payment and was refused. It’s frustrating as I explained to the Department for Work and Pensions that until this chronic illness is recognised as a disability, then sufferers’ voices will not be heard.
My family have been supportive over the years but they also have had enough. On my worst days my husband has had to take a day off work to look after me, when I have been vomiting or suffering from diarrhoea as I am too weak to do anything for myself.
My daughter wants to study neuroscience at university and find a cure for me. I really hope one can be found in my lifetime.
The views and opinions expressed in this ‘Migraine story’ are those of the author and do not necessarily reflect the official policy or position of The Migraine Trust.