Sarah’s story

The scariest symptom is the confusion

Sarah Buff

I first experienced migraine with aura in a classroom at eleven years old. I remember looking up at the white board and seeing a big blurry patch, confused as to why I couldn’t read what the teacher had wrote. I even asked a peer if I could borrow his eyeglasses to see if it would help. Eventually my mother was called to pick me up after the pain had set in.

Worsening migraine

I later received a diagnosis of chronic migraine. From that point on the symptoms developed and worsened.

One of my worst episodes ended with me being hospitalized. The scariest symptom is the confusion. It’s absolutely terrifying when I lose the ability to form words and recognize my surroundings.

New diagnosis

Around the time I turned sixteen, my diagnosis changed. I no longer suffer from chronic migraine.

Instead I experience migraine one to three times per month, which I am thankful for. They are still unpredictable, nonetheless.

Trying to understand my triggers

I’ve tracked every food, every activity, every move I make to no avail, they come when they please and leave the same way.

One thing that hasn’t changed is the fear and anxiety. Everyday I am constantly checking my field of vision for aura. Every time I get in my car I’m hoping and praying a migraine doesn’t strike while I’m stuck in traffic. The only thing scarier than migraine themselves is the fear an anticipation of when the next one will occur.

I’ve faced so much judgement from colleagues and employers thinking its “just a headache.” But I am so grateful to read the stories of others like me. I’ve felt so alone in my suffering, but it certainly helps to see testimonies of others with similar experiences.

The views and opinions expressed in this ‘Migraine story’ are those of the author and do not necessarily reflect the official policy or position of The Migraine Trust.