18th March 2020

The Migraine Trust is here to help you

A personal message from The Migraine Trust Chief Executive about coronavirus (Covid-19)

The Migraine Trust has never been more needed. There are now over 10 million people living with migraine in the UK. At the end of February, we set out our ambitious new five-year strategy. We want to reach more people affected by migraine, help more people, and change more people’s lives for the better. We’re so pleased with the positive response our strategy has received so far.

But February already feels like a long time ago. It is now clear that coronavirus is an unprecedented public health crisis which will significantly impact on all our lives, and on the vital work our charity does to help and support people affected by migraine.

Our first concern is always you. I wanted to start by offering some reassurance that we are doing our best to keep our helpline services open. We recognise that the changes in your daily routines and the additional stress and anxiety this crisis is causing may have an impact on you and your family. We are here to help you.

How we can help you

Our helplines are open Tuesdays and Thursdays, 10am-4pm, on 0203 9510 150.

You can also contact us at any time using our online contact form.

We have also just published new information and advice about how to manage your migraine during this crisis on our blogsite. And we will continue to post answers to your questions on our social media channels, blogsite and ebulletin to help as many people as we possibly can.

I would also encourage you to follow us on Facebook and Twitter as a way of connecting online with other people affected by migraine and staying up to date with the latest information.

We have had to take the difficult decision already to postpone several important outreach events, including our Managing Your Migraine event in Aviemore, and our next Volunteer Forum meeting. We hope to reschedule these for later in the year. We are having to make further difficult decisions on a daily basis.

We will keep you updated about these decisions on our social media and ebulletin.

While our charity has never been more needed, you have never been more needed as well. It is going to be extremely difficult for us to raise vital funds this year from community events and activities where people would normally meet or come together.

So please think about giving us a donation today so we can get through this very challenging period together.

You can give a one-off or regular donation online here.

If you’d like to make a donation over the phone, you can call us on 0203 9510 150 or email us at fundraising@migrainetrust.org and a member of the Fundraising Team will call you back.

NICE approval for Fremanezumab (Ajovy)

The final thing to say is that many of you will already have seen the wonderful news announced last Thursday that the National Institute for Health and Care Excellence (NICE) has decided to allow chronic migraine patients in England and Wales to have access to a calcitonin gene-related peptide (CGRP) drug Fremanezumab (Ajovy) on the NHS for the first time.

We are very proud to have played our part in securing this decision, having also played an important role in securing a similar decision for migraine patients in Scotland in January. While there are uncertain times ahead, I know that by working together we can improve the care and treatment migraine patients receive across the whole of the UK and we can deliver the vital changes set out in our five-year strategy.

Thank you very much for your ongoing support, we’re here to help, and, most importantly, we hope you and your loved ones stay safe. We will get through this and I look forward to celebrating with you all when it is all over.

Take care and very best wishes

Gus

 

Gus Baldwin
Chief Executive of The Migraine Trust